Ewing sarcoma is a rare cancer affecting up to 400 children and young adults each year. It is highly treatable, and Miami Cancer Institute offers advanced treatment protocols and comprehensive support for your child and family. As Florida’s only member of the Memorial Sloan Kettering Alliance, Miami Cancer Institute can provide access to extensive experience in treating this rare disease. Our pediatric cancer care team is experienced in working with children and families affected by rare and serious diseases, and we offer child-friendly care and support in a nurturing, nonthreatening environment. We also partner with Nicklaus Children’s Hospital to provide a comprehensive suite of pediatric specialty services, as needed, for our patients.

What is Ewing sarcoma?

Ewing sarcoma is the second most common bone cancer in children but is still very rare. It commonly forms around the bone but can also involve soft tissue. It tends to develop in long bones such as the ribs, upper arm, thighbone and pelvic bone.

What are the types of Ewing sarcoma?

There are several types of Ewing sarcoma that develop in different kinds of tissue. The most common type is Ewing sarcoma of the bone, accounting for more than 85 percent of cases. Other types include:

  • Extraosseous Ewing sarcoma: Also called extraskeletal Ewing sarcoma, this type affects cartilage or other soft tissue around the bone.
  • Peripheral primitive neuroectodermal tumor (pPNET): These tumors affect nerve tissue and may be found throughout the body. They were previously called Ewing sarcoma, but are now categorized as pPNET.
  • Askin tumor: This is a type of pPNET found in the chest.

What are the risk factors for Ewing sarcoma?

Ewing sarcoma is most common from age 10 to 30. Boys are slightly more likely than girls to get the disease, and white people are at higher risk than African Americans or Asian Americans.

What can you do to prevent Ewing sarcoma?

Because the known risk factors are not preventable, there are no recommended lifestyle changes to prevent Ewing sarcoma.

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